Sunday 8 June 2014

WORLD HYPOPARA AWARENESS DAY

Ever heard about Hypopara? If you are in my circle of Friends & Family, or in the circle of another sufferer, chances are that you possibly know what I am talking about, even if vaguely.

The full name of this condition is hypoparathyroidism. Because of the "thyroid" bit in it, many people mistake the condition for hypothyroidism, and I don't mean only common folks. Even GPs and other health professionals that are not familiar with the condition, regularly misname the two conditions.

Thyroid and parathyroids glands are part of the endocrine system, although the very similar name and close position to each other, they don't directly work together. They cover however important roles in hormone production.


Anterior and posterior neck view


Hypoparathyroidism is a rare endocrine disorder in which the parathyroid glands are unable to produce enough parathyroid hormone. This leads to a low concentration of calcium in the blood.
A difficult condition to manage, hypopara is still being studied and researched on, and a proper treatment needs to be found.

On the 1st of June every year the Hypopara community celebrates World Hypopara Awareness Day, to raise awareness of this rare disease.

I personally have been experiencing this debilitating condition since 2007, following thyroid surgery for papillary carcinoma. It has not been an easy ride ever since, but thanks to discovering the Hypopara Family in 2014, a mutual patients support group, I have been learning important tips on how to manage the condition the best way possible.

Thanks to the fast speed Science is progressing these days, we all hope and look forward  for an effective treatment will be found soon. Keeping fingers crossed and hoping for the best 🍀🍀🍀

To find out more about parathyroids issues check out parathyroiduk.org